Angelman Syndrome Foundation Podcast
Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.
Podcasting since 2022 • 34 episodes
Angelman Syndrome Foundation Podcast
Latest Episodes
Rest Assured: Safe Sleep for Angelman Families
Tired nights, travel challenges, and endless insurance hurdles... sound familiar? In this episode, guest host Liz Thompson, Development Director at ASF, talks with Jon and Amara Smith, Angelman parents and founders of Safe Place Bedding, about ...
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Season 4
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Episode 5
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33:54
Planning for the Future: ASF Housing Champions Share Their Journeys
In this episode, guest host Kathryn Ely, ASF's Family Resource Director, leads a candid discussion with ASF’s Adult Housing Champions, a group of parents and caregivers navigating the complex world of adult housing for individuals with Angelman...
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Season 4
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Episode 3
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1:06:02
Inspired Careers: Siblings and Relatives Share Their Journeys
In this ASF podcast episode, guest host Chloe Knouff brings together siblings and relatives of individuals living with Angelman syndrome to explore how their loved ones inspired their careers. From special education and disability support to ge...
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Season 4
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Episode 2
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49:20
Talking Toileting with Dr. Colin Muething
Toileting is one of the most common (and often most challenging) milestones for individuals with Angelman syndrome. In this episode, Dr. Colin Muething, Director of the Complex Behavior Support Program at Marcus Autism Center, shares practical,...
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Season 4
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Episode 1
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57:06
The History of Disabilities with Hannah Oppenheim
In this episode of the ASF Podcast, CEO Amanda Moore welcomes Hannah Oppenheim, a neurodevelopmental disability fellow, to discuss the history of disability rights and ableism in medicine. They explore key legislation like Section 504, IDEA, an...
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Season 3
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Episode 12
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41:16