The Paper Bag Plan: Caregiving, Independence, and Planning Ahead Artwork

Angelman Syndrome Foundation Podcast

Welcome to the Angelman Syndrome Foundation community! In each episode, Amanda Moore, CEO of Angelman Syndrome Foundation, will discuss Angelman syndrome with experts in their field to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey. We are so glad you have joined us and look forward to connecting and supporting this community together.

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Angelman Syndrome Foundation Podcast

The Paper Bag Plan: Caregiving, Independence, and Planning Ahead

January 26, 2026 • Angelman Syndrome Foundation • Season 4 • Episode 9

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In this episode, ASF CEO Amanda Moore is joined by Christian Pache, an Angelman dad and ASF board member; Anthony Lucero, the filmmaker behind The Paper Bag Plan; and Tina Taosoga, an Angelman mom and longtime advocate.

The discussion centers on Anthony’s film The Paper Bag Plan, a deeply personal story inspired by real experiences within the disability community. Together, they explore the emotional realities caregivers face, the importance of fostering independence at every ability level, and the question so many families carry: What happens when I’m no longer here?

This episode highlights the often unseen strength of caregivers, the value of planning ahead, and the hope that comes from community, representation, and shared understanding.

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Learn more about Angelman Syndrome Foundation at Angelman.org.

Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics.