Angelman Syndrome Foundation Podcast
Angelman Syndrome Foundation Podcast
Latest Episodes
The Paper Bag Plan: Caregiving, Independence, and Planning Ahead
In this episode, ASF CEO Amanda Moore is joined by Christian Pache, an Angelman dad and ASF board member; Anthony Lucero, the filmmaker behind The Paper Bag Plan; and Tina Taosoga, an Angelman mom and longtime advocate.The discu...
Protecting Your Mental Health During the Holidays
The holidays can be joyful – and overwhelming – especially for families caring for someone with Angelman syndrome. In this episode, ASF Family Resource Director Kathryn Ely is joined by licensed professional counselor Shannon Barlow, LCPC, to t...
Advocacy Abby: Opening Doors to Resources and Relief
In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disabil...
Advocating for Access: How Policy Shapes the Future of Gene Therapy
ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need ...
Rest Assured: Safe Sleep for Angelman Families
Tired nights, travel challenges, and endless insurance hurdles... sound familiar? In this episode, guest host Liz Thompson, Development Director at ASF, talks with Jon and Amara Smith, Angelman parents and founders of Safe Place Bedding, about ...